LaVarne Addison Burton
LaVarne Addison Burton is President and Chief Executive Officer of the American Kidney Fund (AKF), a national nonprofit organization whose mission is to fight kidney disease and help people live healthier lives. Ms. Burton hasled AKF since 2005. AKF works on behalf of the 37 million Americans living with kidney disease, and the millions more at risk, with an unmatched scope of programs that support people wherever they are in their fight against kidney disease — from prevention through transplant. With programs that address early detection, disease management, financial assistance, clinical research, innovation and advocacy, no kidney organization directly impacts more lives than AKF.
In 2022, nearly 75,000 low-income people on dialysis and living with kidney transplants nationwide were able to pay for insurance premiums, emergency pandemic-related costs and other health care-related costs not covered by insurance, thanks to financial assistance grants from AKF. Millions of people benefit annually from AKF’s efforts to fight kidney disease through the organization’s numerous educational campaigns about living with chronic kidney disease and its comorbidities. For more than 30 years, AKF’s Clinical Scientist in Nephrology Program has contributed to the pipeline of the most promising clinical researchers who have become leaders in the field of nephrology. AKF advocates on behalf of people with kidney disease and provides aplatform to help ensure that patients are enabled to tell their own stories and have their voices heard. Through its peer-to-peer KidneyNation platform, AKF engages patients, their loved ones and caregivers in funding the fight against kidney disease.
AKF has significantly enhanced its programs and services during Ms. Burton’s tenure, and her leadership has propelled the organization to many notable milestones. AKF has been a pioneer in the development and operation of patient assistance programs by providing grants to cover health insurance premium costs for low-income patients. To run this program, AKF applied for and received the very first Advisory Opinion under a statute that allows the Inspector General at the U.S. Department of Health and Human Services to establish conditions under which nonprofit organizations may partner with private sector providers in the health industry to cover patient health insurance premiums. AKF has successfully run the program while navigating a complex maze of legal, regulatory, financing, corporate and public relations challenges. During this time, AKF has more than quadrupled revenues; established the largest nationwide kidney disease prevention and education program; partnered with corporations to develop award-winning public awareness campaigns; increased patient financial assistance to ensure access to care; established a nationwide AKF Advocacy Network that has grown to nearly 30,000 Ambassadors; and launched the renal community’s only national annual gala, The Hope Affair, which honors patients, advocates and caregivers.
Because kidney failure disproportionately impacts people of color, AKF cannot successfully carry out its mission without addressing issues of health disparities. AKF’s Health Equity initiative is focused on helping to close gaps around early prevention and diagnosis of kidney disease, participation in clinical trials and disparities in access to home dialysis and transplantation.
As a champion of people living with kidney disease, AKF has long been engaged with stakeholders across the health care sector, utilizing these relationships to identify both the barriers that this patient population faces in seeking a diagnosis and the challenges that not having a clear diagnosis causes in patients’ lives. AKF’s Unknown Causes of Kidney Disease Project seeks to improve understanding of how undiagnosed or misdiagnosed causes of kidney disease directly impact patient care and outcomes.
Ms. Burton also established the AKF Quality of Work Environment Initiative (QWE), an ongoing effort to involve employees in defining workplace values and practices, carrying them out and evaluating progress. QWE has resulted in staff workplace evaluations that have steadily improved throughout Ms. Burton’s tenure and attrition rates that are far better than industry standards.
AKF is included in the Consumer Reports list of “Best Charities for Your Donations” and has received Charity Navigator’s highest, 4-star rating for 21 consecutive years. Charity Navigator’s rating system evaluates nonprofits for their financial health, accountability and transparency, and impact. AKF is also listed on “America’s Top 100 Charities” list by Forbes. Ms. Burton was born in Augusta, Georgia and attended public schools there. She received her Bachelor of Arts degree from Howard University and Master of Arts from George Washington University, both in Washington, D.C.